Integrating Educational Modules for Children with Chronic Health and Dental Issues: Premise for Community-based Intervention Framework in Developing Country

Ma. Cecilia del Rosario Licuan

Abstract


This paper consolidated the developmental initiatives and principles of two major researches conducted regarding children with disabilities in the Philippines that focused on chronic health and dental issues using the independent studies of Licuan (2009) and Laguilles (2008) as take-off point to recommend a Community-based Intervention Framework in a developing country. Given the two consolidated studies, this paper conceptualized and recommended a framework to enhance the services for children with disabilities in the country targeting children who are prone to having health complications that are chronic and dental in nature for application in the grassroots or primary level of the country’s health care and educational delivery systems which is community-based and school-based given  feasibility for application at the preparatory basic education and special education levels as well as at the smallest unit of the Philippine community – the barangay. The study looked into the present demographics of children with chronic health and dental issues utilizing the Province of Cavite as the micro-represented research locale.  Together with the profile review, the respondents’ access to health and education services were reviewed vis’ a vis’ the nature and implications analyses of their condition, family profile and economic status. All of these variables were factored-in to develop the framework that included the developmental guidelines, paradigm and new educational module frames that will be used as recommended platform for a succeeding study that will yield to the development and validation of completed educational modules.  This in turn will be distributed and used by the families of children with chronic health and dental health conditions as well as the barangay health workers and concerned teachers to improve the quality of life of children with such conditions with the intent of instructional materials utilization not later than the year 2017 using the Province of Cavite as benchmark locale in the Philippines.


Keywords


disability, access, community-based intervention framework, children with disabilities, educational modules, developing country, chronic health issues, dental issues, primary health care, school-based intervention, basic education, special education.

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References


AlSarheed, M. (2011). Children’s Perception of Their Dentists. European Journal of Dentistry 5(2): 186–190. PMCID: PMC3075993 retrieved March 24, 2015 from http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3075993/

Asher I. & Pearce N. (2014). Global burden of asthma among children. International Journal of Tuberculosis and Lung Disease. 2014 Nov;18(11):1269-78. doi: 10.5588/ijtld.14.0170.

Baker, K. & Donelly, M. (2001). The Social Experiences of Children with Disability and the Influence of Environment: A Framework for Intervention. Disability & Society 16(1), No.1, , pp. 71-85 Taylor & Francis Ltd ISSN 1360-0508

Bessel, A.G. (2001). Educating Children with Chronic Illness. WILSON DISC, The Exceptional Parent. Vol.31 no.9 pp. 44-48.

Braun, Virginia; Victoria Clarke (2006). "Using thematic analysis in psychology". Qualitative Research in Psychology 3 (2): 93. doi:10.1191/1478088706qp063oa

Collaborative Healthcare Leadership A Six-Part Model for Adapting and Thriving during A Time of Transformative Change By: Henry W. Browning, Deborah J. Torain, and Tracy Enright Patterson Retrieved from http://insights.ccl.org/wp-content/uploads/2015/04/CollaborativeHealthcareLeadership.pdf

Common Dental Complaints/Emergencies (2016), Care Family Dentistry retrieved on January 2, 2016 from http://carverfamilydentistry.com/common-dental-complaintsemergencies/

Coniglio, S.J., & Blackman, J.A. (1995). Development Outcome of Childhood Leukemia. Topics in Early Childhood Special Education, 15:1, 19-31.

Creswell, John W. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. 4th edition. Thousand Oaks, CA: Sage Publications, 2014

Domínguez, Silvia, editor.Mixed Methods Social Networks Research. Cambridge, UK: Cambridge University Press, 2014

Early childhood intervention, special education and inclusion: focus on Belarus (2008). Geneva, United Nations Children’s Fund

Education for all global monitoring report 2007: strong foundations: early childhood care and development (2006) Paris, United Nations Educational, Scientific and Cultural Organization

Engle PL et al. (2007). Strategies to avoid the loss of developmental potential in more than 200 million children in the developing world. Lancet, 369:229-242.

Estis and Associates (n.d.). Collaborative Leadership Model vy retrieved on December 28, 2015 from http://www.slideshare.net/restis/ryan-estis-associates-collaborative-leadership-model

Facts for life (2010). New York, United Nations Children’s Fund, World Health Organization, United Nations Educational, Scientific and Cultural Organization, United Nations Population Fund, United Nations Development Programme, Joint United Nations Programme on HIV/AIDS, World Food Programme and the World Bank

Falvo, D. R. (2005). Medical and psychosocial aspects of chronic illness and disability. Sudbury, MA: Jones and Bartlett.

Feldman, Jacob J. Diane M. Makuc, Joel C. Kleinman, and Joan Cornoni-Huntley. 1989. "National Trends in Educational Differentials in Mortality." American Journal of Epidemiology 129:919-33.

Ferrance, E. (2000), Themes in Education: Action Research, Northeast and Islands Regional Educational Laboratory, Brown University, Providence:RI

Filmer D (2008) Disability, Poverty, and Schooling in Developing Countries: Results from 14 household surveys. World Bank EconRev 22: 141–63. doi: 10.1093/wber/lhm021

Filmer D. Disability, poverty, and schooling in developing countries: results from 14 household surveys. The World Bank Economic Review, 2008, 22:141-163.

Gabarino G. & Ganzel B. (2000). The human ecology of early risk. In: Shonkoff JP, Meisels SJ eds. Handbook of Early Childhood Intervention, 2nd ed. Cambridge, Cambridge University Press, 76-93.

Garcia Coll C. & Magnuson K. (2000). Cultural differences as sources of developmental vulnerabilities and resources. In: Shonkoff JP, Meisels SJ, eds. Handbook of Early Childhood Intervention, 2nd ed. Cambridge, Cambridge University Press, 2000:94-114.

Grantham-McGregor S et al. (2007) . Developmental potential in the first 5 years for children in developing countries. Lancet, 369:60-70.

Heibutzki, R. (n.d.). The Importance of Obtaining Job Security retrieved December 27, 2015 from http://work.chron.com/importance-obtaining-job-security-21845.html

Hesse-Biber, Sharlene Nagy. Mixed Methods Research: Merging Theory with Practice. New York: Guilford Press, 2010

Integrated social protection systems: enhancing equity for children (2012). New York, United Nations Children’s Fund

Kerac M et al. (2012). Impact of disability on survival from severe acute malnutrition in a developing country setting – a longitudinal cohort study. Archives of Disease in Childhood, 97:A43-A44.

Kuper, H., Dok, A., Wing, K. Danquah, L., Evans, J., Zuurmond, M. & Gallinetti, J. (2014). The Impact of Disability on the Lives of Children; Cross-Sectional Data Including 8,900 Children with Disabilities and 898,834 Children without Disabilities across 30 counties retrieved November 14, 2015 from http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0107300

Laguilles, K. R. (2008), Development and Validation of an Oral Health Instructional Material for Children with Developmental Disabilities, unpublished masters thesis, UP Diliman, Philippines

Licuan, M.D. (2009), Development and Validation of an Interdisciplinary Manual for Use of Parents, Teachers and Professionals in the Education of Children with Chronic Illness, Research Journal in Special Education and Independent Living, Volume 1 Issue no. 1, Gifted Philippines Inc.

Livneh, H. & Antonak, R. (2005). Psychosocial Adaptation to Chronic Illness and Disability: A Primer for Counselors. WILSON DISC, Journal of Counseling and Development. Vol. 83 pp 12-20.

Lynch EW, Hanson MJ (2004). Developing cross-cultural competence: a guide for working with children and their families, 3rd ed. Baltimore, Paul H. Brookes Publishing Co.

Mahoney, G. & Wheeden, C. (1997). Parent-child Interaction- the Foundation of Family-Centered Intervention Early Intervention Practice: A Response to Baird and Peterson. Topics In Early Childhood and Special Education, Vol. 17, 165-184.

Malde, B. et al. (2015). Extended family networks and household well-being: evidence from Malawi, . Institute for Fiscal Studies © The Institute for Fiscal Studies ISBN: 978-1-909463-93-6 retrieved December 4, 2015 from http://www.ifs.org.uk/uploads/publications/research%20summaries/family_networks.pdf

McConachie H et al. (2001). Difficulties for mothers in using an early intervention service for children with cerebral palsy in Bangladesh. Child: Care, Health and Development, 27:1-12.

Mont, D. (2006). Disability in conditional cash transfer programs: drawing on experience in LAC: paper for Third International Conference on Conditional Cash Transfers. Istanbul

Newacheck, P.W., Hughes, D.C., Hung, Y.Y., Wong, S., & Stoddard, J.J. (2000). The unmet health needs of America's children. Pediatrics, 105, 989 –997.

Niglas, Katrin. “How the Novice Researcher Can Make Sense of Mixed Methods Designs.†International Journal of Multiple Research Approaches 3 (2009): 34-46

Norwood, K.W. & Jr, Rebecca L. Slayton, R. (2013). Oral Health Care for Children With Developmental Disabilities. Pediatrics, VOLUME 131 / ISSUE 3 retrieved October 3, 2014 from http://pediatrics.aappublications.org/content/131/3/614

Oliva MG, Kenny DJ, Ratnapalan S. (2008) Nontraumatic dental complaints in a pediatric emergency department. Pediatric Emergency Care 24(11): 757-60 doi: 10.1097/PEC.0b013e31818c2641 retrieved December 27, 2015 from

http://www.ncbi.nlm.nih.gov/pubmed/18955914

Onwuegbuzie, Anthony J. and Nancy L. Leech. “Linking Research Questions to Mixed Methods Data Analysis Procedures.†The Qualitative Report 11 (September 2006): 474-498;

Paguio, D. (2005, July). Effectiveness of Art Therapy in Imrpoving Self-Esteem and Alleviating Anxiety Levels among Children with Cancer. Unpublished Masters Thesis, UP Diliman.

Persons with Disability in the Philippines (Results from the 2010 Census) | National Statistics Office. (2013, January 10). Retrieved July 20, 2014, from http://www.census.gov.ph/content/persons-disability-philippines-results-2010-census

Peterson FL, Cooper RJ, Laird JM. Enhancing teacher health literacy in school health promotion: a vision for the new millennium. Am J School Health 2001;71(4):138-44.

Posarac, A. (2012, May). Socioeconomic Status of Persons with Disabilities and the costs of the Disability. Retrieved September 14, 2014 from http://siteresources.worldbank.org/DISABILITY/Resources/280658-1327953883745/8402175-1337109498381/module2_Posarac.pdf

Promoting the rights of children with disabilities (Innocenti Digest No. 13) (2007). Florence, United Nations Children’s Fund, Innocenti Research Centre

Ritchie, M. (2013). Children Born with Disabilities: How Families Respond retrieved March 26, 2015 from http://www.childresearch.net/papers/rights/2013_01.html

Seddon, P.C. & Khan, Y. (2003). Respiratory problems in children with neurological impairment. Arch Dis Child 2003;88:75-78 doi:10.1136/adc.88.1.75 retrieved March 28, 2015 from http://adc.bmj.com/content/88/1/75.full

Shqair, A.Q. et al. (2012) Dental emergencies in a university pediatric dentistry clinic: a retrospective study. Brazilian Oral Research, vol.26 no.1 São Paulo retrieved on March 28, 2015 from http://www.scielo.br/scielo.php?script=sci_arttext&pid=S1806-83242012000100009

Simeonsson RJ. (2000). Early childhood development and children with disabilities in developing countries. Chapel Hill, University of North Carolina.

Singal N, Jeffery R (2011) Inclusive education in India: the struggle for quality in consonance with equity. In: Artiles A, Kozleski E, Waitoller F, editors. Inclusive Education: Examining Equity on Five Continents. Massachusetts: Harvard Education Press.

Sobo, E., & Kurtin, P. (2007). Optimizing care for young children with special health care needs; knowledge and strategies for navigation the system. (p. 28). Baltimore, Maryland 21285-0624: Paul H. Brookes Publishing Co., Inc.(n.d.). Retrieved September 12, 2014 from http://www.unicef.org/socialpolicy/files/Philippines_GlobalStudy(1).pdf

Status of the Convention on the Rights of the Child: report of the Secretary-General. In: Sixty-fifth General Assembly of the United Nations, New York (2010). New York, United Nations (A/65/206) retrieved March 14, 2014 from http://www.ecdgroup.com/pdfs/news-UNGA65_Status%20on%20the%20Convention%20on%20the%20Rights%20of%20the%20Child_SG%20Report%20_August%202010.pdf

Tashakorri, Abbas and John W. Creswell. “The New Era of Mixed Methods.†Journal of Mixed Methods Research 1 (January 2007): 3-7

Thompson, L., Lobb, C., Elling, S., Herman, S., Jurkiewicz, T., & Hulleza, C. (1997). Pathways to family empowerment: Effects of family-centered delivery of early intervention services. Exceptional Children, 64, 99-113

Torpy, J.M. et al. (2010). Chronic Diseases of Children. Journal of American Medical Association, 303(7):682. doi:10.1001/jama.303.7.682. retrieved on December 4, 2015 from http://jama.jamanetwork.com/article.aspx?articleid=185394

Trani J-F, Browne J, Kett M, Bah O, Morlai T, et al. (2011) Access to health care, reproductive health and disability: a large scale survey in Sierra Leone. Soc Sci Med 73: 1477–89. doi: 10.1016/j.socscimed.2011.08.040

Trivette, C. M., Dunst, C. J., Boyd, K., & Hamby, D. W. (1995). Familiy-oriented program models, help giving practices, and parental control appraisals. Exceptional Children, 62, 237-249.

UNESCO Policy Brief on Early Childhood. Inclusion of Children with Disabilities: The Early Childhood Imperative (2009) . N° 46 retrieved March 15, 2013 from http://unesdoc.unesco.org/images/0018/001831/183156e.pdf

UNICEF (2005) The State of the World’s Children 2006: Excluded and Invisible. New York: UNICEF.

UNICEF (2013) State of the World’s Children 2013. New York: UNICEF.

UNICEF. (2013, December 6). Disabilities. Retrieved January 22, 2014, from UNICEF retrieved on January 24, 2014 from http://www.unicef.org/disabilities/

USC Libraries Research Guides: Types of Research Design retrieved on December 4, 2013 from http://libguides.usc.edu/writingguide/researchdesigns

Verwest, T. (2015). Five Common dental Problems fro Kids Dr Tim Verwest retrieved on December 4, 2015 from http://drverwest.com/5-common-dental-problems-for-kids/

Wachs, T.D. & Sheehan, R. (2013). Assessment of Young Developmentally Disabled Children. Psychology. Springer Science & Business Media

Walker SP et al. (2001). Inequality in early childhood: risk and protective factors for early child development. Lancet, 378:1325-1338.

Walker SP et al. (2007). Child development: risk factors for adverse outcomes in developing countries. Lancet, 369:145-147.

World Bank (2009). Examining early child development in low-income countries: a toolkit for the assessment of children in the first five years of life. Washington.

World Health Organization & World Bank (2011). World report on disability. Geneva, World Health Organization, retrieved on March 15, 2013 from http://www.who.int/disabilities/world_report/2011/en/index.html

World Health Organization (2012). Early childhood development and disability – A discussion paper retrieved on March 14, 2014 from www.who.int/disabilities/publications/other/ECDD_final_word.doc

World Health Organization Disability and Health Fact Sheet N352 reviewed on December 2015 retrieved from http://www.who.int/mediacentre/factsheets/fs352/en/ on December 27, 2015

World Health Organization World Report on Disability (2011) retrieved December 27, 2015 from http://www.who.int/disabilities/world_report/2011/report/en/

X, (2003). Students with Chronic Illness: Guidance for Schools, Families and Students. WILSON DISC, Journal of School Health. Vol. 73, Iss.4 131-132.

Zamani, A. (2006), Health and Safety Notes California Childcare Health Program retrieved on December 7, 2015 from http://www.ucsfchildcarehealth.org/pdfs/healthandsafety/OralHlthSpNeedsEN103006_adr.pdf

Zhanga, W. (2014). “Mixed Methods Application in Health Intervention Research: A Multiple Case Study.†International Journal of Multiple Research Approaches 8 (2014): 24-35


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